| year of publication | ISBN | author(s) | title |
|---|---|---|---|
| 2009 | 978-1-929539-02-4 | Alison Eckerman · Melissa Kruger · Christina Doyle · Gayun Chan-Smutko CGC | VHL Handbook Kids' Edition: A handbook for parents and kids living with von Hippel-Lindau |
| '' | 978-1-929539-05-5 | VHL Family Alliance | What You Need to Know about VHL: A reference handbook for people with von Hippel-Lindau, their families, and support personnel |
| 2013 | 978-1-929539-18-5 | Melissa Kruger · Gayun Chan-Smutko | Vhl Handbog Borne- Og Ungdomsudgaven (Danish Edition) |